I recently started using the Daytrana patch for suspected ADD. I am not sure I have ADD only because I have read that this drug is also helpful for those with fibromyalgia. Does anyone also use an ADD or ADHD med to manage fibro symptoms of brain fog, forgetfulness & organization? It does help me significantly and my mood is much better and more stable…it makes the depression meds work better or helps them at least.
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This song just about sums up the way I feel about trying to maintain any kind of adult relationship (friends/family/spouse) while having a chronic illness.
Not Meant To Be lyrics
It’s never enough to say I’m sorry
It’s never enough to say I care
But I’m caught between what you wanted from me
And knowing that if I give that to you
I might just disappear
Nobody wins when everyone’s losing
It’s like one step forward and two steps back
No matter what I do you’re always mad
And I, I can’t change your mind
I know it’s like trying to turn around on one way street
I can’t give you what you want
And it’s killing me
And I, I’m starting to see
Maybe we’re not meant to be
It’s never enough to say I love you
No, it’s never enough to say I try
It’s hard to believe
That’s theres no way out for you and me
And it seems to be the story of our lives
Nobody wins when everyone’s losing
It’s like one step forward and two steps back
No matter what I do you’re always mad
(From: http://www.elyrics.net/read/t/theory-of-a-deadman-lyrics/not-meant-to-be-lyrics.html)
And I, I can’t change your mind
I know it’s like trying to turn around on a one way street
I can’t give you what you want
And it’s killing me
And I, I’m starting to see
Maybe we’re not meant to be
There’s still time to turn this around
You could be building this up instead of tearing it down
But I keep thinking
Maybe it’s too late
It’s like one step forward and two steps back
No matter what I do you’re always mad
And I, I can’t change your mind
I know it’s like trying to turn around on a one way street
I can’t give you what you want
And it’s killing me
And I, I finally see
Maybe we’re not meant to be
It’s like one step forward and two steps back
No matter what I do you’re always mad
And I, baby I’m sorry to see
Maybe we’re not meant to be -
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Meds
It just occurred to me that it might be helpful to someone to see what meds I am taking to compare with their own. None of the heavy duty pain meds ever did anything for me and they usually don’t with fibro. Tramadol (Ultram) is the only med I ever took that did anything and it just barely took the edge off when I was at my worst and does the same now. It’s not as addicting as some of the other painkillers either. I have suffered from depression my whole life but wasn’t diagnosed until my 30’s. I take Wellbutrin and Lexapro and have done so for years. My most recent addition medicine wise has been Daytrana which is a patch for ADD. I am not convinced I have ADD even though it does help me focus because I have read that this med also helps fibromyalgia sufferers with brain fog etc…
As long as I get enough sleep and pace myself well, my mini-eon device does a good job keeping the pain in check unless it’s winter. The delayed food allergy avoidance diet and the anti-viral med (famvir) have made this my first winter since I was diagnosed that I actually do not feel like jumping off a bridge. Winters are just totally unbearable but I have done much better this winter because of the treatment prescribed by Dr. Daniel Dantini (www.4fibromyalgia.com).
Never ever give up looking for something that will help the cause of fibro…not just mask the symptoms. Dr. Dantini’s program is the first thing I’ve seen that addresses the cause of fibro and I encourage you to check out his program if you feel you are at the end of your rope as I did. The man has fibro himself and has for 30 years - he knows his stuff and treating fibro is his passion.
To health….
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Our New Home - Fibromyalgia has me moving from freezing cold NH to central sunny, warm Florida!
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» Eon-Mini - My Implanted Device
This is info from the manufacturer meant for the medical community but I think it should be viewed by all patients as well.
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Patient Video after Neurostimulator Trial with Dr. Greenspan in 2008
Video my doc took after my trial and I went on to have the permanent device implanted. It has been two years and I continue to have relief from pain although not 100% - but the best part is my sleep has improved 100000% - if possible. Interesting note - check out this page of his site…HE quotes ME - but refers to it generically as “I hear my patients say this all the time”…..HA! Thanks Doc!
“Get Your Life Back” at PainCare. Listen…
http://www.painmd.com/ audio file on page
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Dr. Dantini’s Treatment
When I was first diagnosed with fibromyalgia, I saw a Rheumatologist who did nothing for me for almost 2 years. In desperation, I looked for something else and found Dr. Greenspan and his Occipital Neuromodulator. Luckily, I was approved for the treatment and improved greatly but after two years, I was still upset that I still had so many fibro symptoms that have nothing to do with pain - like the fog and extreme tiredness. I stumbled upon Dr. Dantini’s site and decided this had to be the answer to the rest of the equation. I booked a flight and went to Florida to see him and begin treatment. It has been a year since I first saw him and it has been a huge improvement over my best days before I started his treatment. I never would have thought that a virus and food sensitivities could be an underlying cause of fibromyalgia. Now, I am treating the cause and not just masking the symptoms. God bless Dr. Dantini too!
